2014 has been a rough year for our family. Most of the struggle has been centered around our 9 month old son, John David. For the sake of time, I’ll spare the details, but you can read about them here.
My youngest son has Catel-Manzke syndrome. It’s one of those strange syndromes doctors have little information on. There have been about 23 known cases of the condition. That really isn’t all that special as there are likely thousands of syndromes children can be afflicted with that only affect a small number of the population.